Thursday, June 26, 2025

Sickle Cell Anaemia Elimination Mission: A Step Towards Tribal Health Equity

 Published on: June 26, 2025

By Suryavanshi IAS


Introduction

In a landmark effort under the National Sickle Cell Anaemia Elimination Mission (NSCAEM) launched in 2023, India has screened over 5.72 crore people, identifying 2.09 lakh patients with Sickle Cell Disease (SCD) and 16.3 lakh carriers. This mission is critical to India's public health landscape—especially due to the high prevalence of SCD among tribal populations.


What is Sickle Cell Disease (SCD)?

SCD is a genetic blood disorder where red blood cells (RBCs) become rigid and sickle-shaped, impairing their ability to carry oxygen. This leads to:

·         Chronic pain and fatigue

·         Organ damage

·         Increased risk of infection

·         Delayed growth in children

It is inherited and cannot be cured, but early diagnosis and medication like hydroxyurea can significantly improve life quality.


NSCAEM: Vision & Implementation

Launched by:

Prime Minister Narendra Modi, 2023

Objectives:

·         Screen 7 crore people (under age 40) in 17 high-burden States/UTs by 2025-26

·         Identify trait carriers and patients

·         Ensure early diagnosis, timely treatment, and awareness generation

Focus States:

Maharashtra, Madhya Pradesh, Odisha, Chhattisgarh, Jharkhand, Uttar Pradesh, Bihar, Gujarat, Rajasthan — with emphasis on Scheduled Tribes (STs)


Why Is the Focus on Tribal Populations?

Over 50% of India’s SCD cases are in tribal regions.

Challenges:

·         Traditional medicine preference

·         Mistrust in modern health systems

·         Geographical inaccessibility

·         Social stigma

·         Poor awareness of genetic inheritance

Dr. Manisha Madkaikar (ICMR) rightly emphasised universal screening and prenatal care, especially for pregnant women and newborns, as key to controlling SCD.


Success Stories on Ground

Ganesh V. Dante from Chandrapur, Maharashtra, discovered his 7-year-old son's condition only through mass screening under NSCAEM. Today, the child is receiving treatment and attending school—an inspiring example of how access changes lives.


India's Gaps & What More is Needed

·         No dynamic national registry

·         Lack of comprehensive care centres

·         Need for specialised diagnostic labs & trained staff

·         Social stigma prevents early treatment


Relevance for UPSC

Prelims :

Keywords: Sickle Cell Disease, NSCAEM, hydroxyurea, National Health Mission, tribal health, genetic disorder

Sample MCQ:

Q. Which of the following statements about Sickle Cell Disease (SCD) is correct?
A) It is caused by a virus
B) It can be cured with antibiotics
C) It is a genetic blood disorder mainly affecting red blood cells
D) It spreads through contaminated water

Correct Answer: C


Mains  – GS II / GS III

Theme: Health, Governance, Vulnerable Sections, Tribal Issues

Sample Q:

Q. "The burden of sickle cell anaemia in India underscores the need for tribal health justice and inclusive public health policy." Discuss in the context of NSCAEM.

Points for Answer:

·         Define SCD and its impact

·         Role of NSCAEM and NHM

·         Need for awareness, early screening, and genetic counselling

·         Importance of health infrastructure in tribal areas

·         Role of civil society and local administration

·         Need for national registry and specialised care


Way Forward

1.      Expand outreach through ASHA and health workers

2.      Integrate genetic counselling with school and ANC programmes

3.      Combat social stigma via tribal leaders and media

4.      Establish SCD Centres of Excellence in high-prevalence zones

5.      Build dynamic real-time data registries for disease tracking


Conclusion

India’s fight against Sickle Cell Anaemia reflects a broader struggle for inclusive healthcare. With sustained political will, community-based strategies, and investment in public health, India can not only eliminate SCD but also empower its most vulnerable citizens.


Prepared by:
Suryavanshi IAS – Foundation for Civil Services Excellence
Empowering Aspirants with Current-Affairs-Driven Insights

 

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